Brain and Spinal Cord Resources
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Neurological Case Management Associates. Providing a specialized approach to personal injury: specializing in Neurological Case Management; Traumatic and Acquired Brain and Spinal Cord Injuries (ABI / TBI / SCI); Special Needs Trust Management; Forensic Case Management; Life Care Plan Implementation; Educational / Vocational Planning; Service Coordination; Advocacy; and Rehabilitation Consultation. September 8-9, 2007 - Miami Beach, Florida - 13th Annual Brain Injury Symposium - Miami Beach Resort - Presented by Baptist Hospital September 27-29, 2007 - San Antonio, Texas - The 5th Annual Conference on Brain Injury and the 20th Annual Brain Injury Legal Conference - The Westin Riverwalk - Presented by The North American Brain Injury Society October 28, 2007 - Ritz Carlton, Palm Beach, Florida - A Night in the Tropics Gala benefiting Brain Injury Association of Florida, Inc. November 2-4, 2007 - Miami, Florida - Pediatric Brain & Spinal Cord Injury Conference & Exhibition - The Sonesta Resort - Presented by University of Miami/Jackson Memorial Pediatric Brain & Spinal Cord Injury Program Federal Resource Center for Special Education Network. The Regional Resource and Federal Centers (RRFC) Network is made up of the six Regional Resource Centers for Special Education (RRC) and the Federal Resource Center (FRC). The six RRCs and the FRC are funded by the federal Office of Special Education Programs (OSEP) to assist state education agencies in the systemic improvement of education programs, practices, and policies that affect children and youth with disabilities. These centers offer consultation, information services, technical assistance, training, and product development. Florida Department of Education. Bureau of Exceptional Education and Student Services National Information Center for Children and Youth with Disabilities. Serves the nation as a central source of information on disabilities in infants, toddlers, children, and youth; IDEA, which is the law authorizing special education; No Child Left Behind (as it relates to children with disabilities); and research-based information on effective educational practices. Brain & Spinal Cord Injury Program. The Brain and Spinal Cord Injury Program (BSCIP) is a state government administered program funded through traffic-related fines, surcharges for driving under the influence and boating under the influence convictions, temporary license tag fees, and a percentage of funds from the motorcycle specialty tag. These funds are deposited into the BSCIP Rehabilitation Trust Fund. The BSCIP general program provides direct services by employing 21 case managers, 21 rehabilitation technicians and 5 regional managers. Children 18 and younger receive services from 12 Children's Medical Services nurse case managers, 2 human service counselors, and an administrator. Services include: case management, acute care, inpatient and outpatient rehabilitation, transitional living, assistive technology, home and vehicle modification, and long-term community-based supports funded under contract with specific not-for-profit agencies. Medicaid Offices. This program is a branch of the Florida Department of Children & Families and assists children and adults with disabilities or mental illness. National Institute of Disability and Rehabilitation Research. Created in 1978, The National Institute on Disability and Rehabilitation Research (NIDRR) is a national leader in sponsoring research. NIDRR is located in Washington, D.C., and is one of three components of the Office of Special Education and Rehabilitative Services (OSERS) at the U.S. Department of Education. NIDRR operates in concert with the Rehabilitation Services Administration (RSA) and the Office of Special Education Programs (OSEP). It is the mission of NIDRR to generate, disseminate and promote new knowledge to improve the options available to disabled persons. The ultimate goal is to allow these individuals to perform their regular activities in the community and to bolster society’s ability to provide full opportunities and appropriate supports for its disabled citizens. Toward this end, NIDRR conducts comprehensive and coordinated programs of research and related activities to maximize the full inclusion, social integration, employment and independent living of individuals of all ages with disabilities. NIDRR’s focus includes research in areas such as employment; health and function; technology for access and function; independent living and community integration; and other associated disability research areas. Social Security Offices. Offer information and help regarding social security benefits. Catalano's Nurses Registry. Provide live-in or shift personal care assistants/certified nursing assistants throughout South Florida. Whitsyms Nursing Service. Whitsyms Nursing Registry is a state licensed and insured Nursing Registry. We provide referral services for Registered Nurses, Licensed Practical Nurses, Nurses' Aides, Homemakers, Companions, and Sitters to hospitals, nursing homes, home health agencies, assisted living facilities, and individuals who need care at home or while on vacation. Whitsyms serves the South East Florida region. Habitat for Humanity. Nonprofit, ecumenical Christian housing ministry that seeks to eliminate poverty housing and homelessness from the world. Home Builders Associations. Offer free or low cost constructions supplies or home modification services to persons with special needs. Housing Counseling Agencies. Offer guidance on home buying, renting, reverse mortgages, and foreclosure prevention. Lash & Associates Publishing/Training. Lash & Associates Publishing/Training Inc. was founded by Bob Cluett, Marilyn Lash, Roberta DePompei and Ron Savage. We publish practical, informative, and affordable materials on brain injury in children, youths and adults. Our audience includes families, persons with brain injuries, health care professionals, rehabilitation specialists, educators and community staff. We have chosen authors who are experts in their fields to write on the neurological, psychological, communicative, psychosocial and educational impact of brain injuries among children, youth and adults. The hallmark of our company is that we provide accurate and needed information on brain injury that is based on best practices and current research. But we take out the jargon and present it in user-friendly formats that can be readily understood and applied by clinicians, families and educators. Outlook. Premier Outlook is a periodical about brain injury. Voice Newspaper. Welcome to the Voice Newspaper web site. We are Medical Case Management, Physical Rehabilitation Newspaper targeted to professionals in health care and to consumers with physical disabilities. Center for Mental Health Services. The Substance Abuse and Mental Health Services Administration's (SAMHSA) National Mental Health Information Center provides information about mental health via a toll-free telephone number (800-789-2647), this web site, and more than 600 publications. The National Mental Health Information Center was developed for users of mental health services and their families, the general public, policy makers, providers, and the media. Information Center staff members are skilled at listening and responding to questions from the public and professionals. The staff quickly directs callers to Federal, State, and local organizations dedicated to treating and preventing mental illness. The Information Center also has information on Federal grants, conferences, and other events. Volunteer Florida. Volunteer Florida believes that “strengthening Florida’s communities through volunteerism and service” is not just a mission statement; it’s a way of life. Now, more than ever, Floridians of all ages are ready to answer the call and lend a hand in their local communities. Our 25 Governor-appointed Commissioners lead the way for Volunteer Florida by helping to develop, promote and implement volunteerism and service throughout the state. Because of their hard work and the dedication of partners, Floridians are stepping up to the plate and volunteerism is on the rise. YMCA. Together, the nation's 2,594 YMCAs are the largest not-for-profit community service organization in America, working to meet the health and human service needs of 20.1 million men, women, and children in 10,000 communities in the United States. YMCAs are at the heart of community life across the country: 42 million families and 72 million households are located within three miles of a YMCA. YMCA stands for Young Men's Christian Association, but don't misinterpret this to mean that YMCAs are only for "young, Christian men". From its start more than 150 years ago, when George Williams founded the YMCA as a substitute Bible study and prayer for life on the streets, the YMCA was unusual because it crossed the rigid lines that separated all the different churches and social classes in England in those days. This openness was a trait that would lead YMCAs to recognize their strength is in the people they bring together -- Ys are for all people of all faiths, races, ages, abilities, and incomes. YMCAs' financial assistance policies ensure that no one is turned away for reasons of inability to pay. Brooks Rehabilitation Hospital. A 143-bed state-of-the-art, not-for-profit inpatient hospital located in Jacksonville, Florida. Dan Marino Center. Miami Children's Hospital Dan Marino Center is a center for the comprehensive evaluation and treatment of children with special needs. The Center, developed as a partnership between the Dan Marino Foundation and Miami Children's Hospital, is a not-for-profit entity fully owned by Miami Children's Hospital. Since this center's inception in 1998, it has grown rapidly and is now providing neurological and developmental services to children throughout South Florida as well as South America and Europe. The Dan Marino Center also coordinates community outreach projects that include the services of specialized medical and allied healthcare professionals, educational organizations, volunteer programs, and parent support organizations. Florida Club Care Center. For more information please contact Jesus Brito, Director of Business Development, Pediatric Unit at (786) 222.8273. Florida Institute for Neurologic Rehabilitation. The Florida Institute for Neurologic Rehabilitation, Inc. (FINR) provides the full continuum of care for children and adults with neurologic dysfunction. FINR is dedicated to excellence in the provision of rehabilitation, education and vocational services to both children and adult survivors of brain injury. Through the provision of individualized assessment, restorative service and foundational retraining in behavior, psych-social, cognitive, physical functioning, communication, daily living, education, and vocational area, FINR seeks to assist its clients in attaining their maximum level of functioning and quality of life in the most normalized and least restrictive environment. Healthsouth Hospital. Provides intensive rehabilitation following a disabling injury or illness Kindred Hospital South Florida. Kindred Hospital South Florida Ft. Lauderdale is a 70-bed, JCAHO-accredited, Medicare and Medicaid-certified, long-term acute care facility. We provide care for medically complex patients 24 hours a day, 365 days a year. The primary market area is the Broward, Palm Beach, Dade, and Treasure Coast region, although patients are referred from outside the area on occasion. Kindred Hospital South Florida Ft. Lauderdale has two remote facilities: Kindred Hospital South Florida Coral Gables and Kindred Hospital South Florida Hollywood. L & M Directory. The L & M Directory was created to provide the senior community of South Florida, their families, caretakers, and elder care professionals with basic guidelines for living accommodations and nursing/retirement options available in the tri-county area. Lakeview Specialty Hospital & Rehab. Providing rehabilitation for neurologically-based disorders and impairments; empowering individuals through increased independence and productivity; supporting family members through education and training; facilities located in New Hampshire, Maine and Wisconsin. Mentor ABI. MENTOR ABI is a group of local providers who specialize in post-acute rehabilitation for persons with acquired brain injury and other neurological disorders. Miami Jewish Home and Hospital. Scope of Services Available for Patients With Medically Complex Needs:
Call Admissions at (305) 762-1500 for information. My Intensive Therapy. My Intensive Therapy offers a intensive, comprehensive approach to therapy, specializing in the treatment of people with neurological and orthopedic injuries. Our programs include the Intensive Adeli Suit program, a modified intensive program and an intensive traditional program. Our comprehensive approach to therapy makes our center unique and the patient's progress truly remarkable. Ocean Hyperbearic Center. The Ocean Hyperbaric Neurologic Center is believed to be the original center specializing in the neurological applications of hyperbaric oxygenation and the potentially recoverable brain. Pinecrest Rehabilitation Hospital. In 1986, Pinecrest Rehabilitation Hospital was founded to meet the rehabilitation needs of a growing community. Today Pinecrest is one of the regional leaders in the rehabilitation field, providing advanced technology, treatment and rehabilitation management services. The 90-bed facility is fully accredited by the Joint Commission on Accreditation of Healthcare Organizations (JCAHO) and the Commission on Accreditation of Rehabilitation Facilities (CARF) has extended accreditation not only to the hospital, but to the hospital's other services, including its outpatient center. Pinecrest Rehabilitation Hospital accepts Medicare and Medicaid as well as many other insurance plans. Their specialty programs include Brain Injury, Stroke and Spinal Cord Injury. ResCare Premier. ResCare Premier-Ft. Lauderdale offers a combination of services, both residential rehabilitation and supported living services, under one roof. The facility is a spacious 4 bedroom, 2 1/2-bathroom home on an acre of land. Palm and coconut trees and a secured privacy fence surround the home. The program offers a highly structured daily schedule emphasizing functional skills and pre-vocational skills. Incentive programs are utilized to provide participants with immediate rewards for appropriate behaviors. Treatment plans are individualized so that the focus is on individual needs. Licensed therapies are also available. Shepherd Center. Shepherd Center is an Atlanta-based catastrophic care hospital, treating people with spinal cord injuries, acquired brain injuries, multiple sclerosis and other neuromuscular illnesses and urological problems. Speech Time. Speech Time, INC. is a team of highly skilled and qualified professionals of master’s level, bilingual, licensed, and certified Speech-Language Pathologists dedicated to provide high quality and convenient services in Miami-Dade County. St. Anthony's Rehab Hospital. St. Anthony's Rehabilitation Hospital is a 26-Bed state of the art acute medical rehabilitation facility designed for patients who are medically stable and can benefit from intensive rehabilitation in a structured hospital setting. St. Catherine's Rehab Hospital. St. Catherine's Rehabilitation Hospital is a 60-bed state-of-the-art medical facility designed for patients who are medically stable and can benefit from intensive rehabilitation in a disciplined hospital setting. Therapies 4 Kids. The TheraSuit Method™ is a very holistic approach to treatment of individuals with neurological disorders like Cerebral Palsy, Developmental Delays, Traumatic Brain Injuries, Autism and other conditions which affect a child's motor and or cognitive functions . The TheraSuit Method™ combines the best elements of proven various techniques and methods, and has a sound rationale based on the physiology of exercises. University of Miami/Jackson Memorial Hospital Pediatric Neurotrauma Program. The Ryder Trauma Center (RTC) at the University of Miami/ Jackson Memorial Medical Center is one of the busiest trauma centers in the country. Annually they provide care to over 300 children and adolescents less than 16 years of age with traumatic brain injury (TBI). The Pediatric Neurotrauma Program was established in September of 2001. Over the last few years they have tracked all children admitted to the Children's Hospital and UM/JMMC with a TBI and have identified the most important problems they encounter in their acute and follow-up care. Due to the complex and diverse nature of care for these children they have been able to develop and implement a model program that streamlines the care of these patients throughout the continuum. By doing this they have come to realize that all children with neurological disorders and acquired brain injury (tumors, encephalitis, stroke, GBS, MS etc.) should also receive this type of program. They have also expanded the age range to all patients under 21 years of age. Victory Living Program. Victory Living Programs is a non-profit 501(c)3 agency which serves developmentally disabled and brain/spinal cord injured adults. The agency provides supervised residential living, supervised independent living in the community with supports, and employment services. Victory Living Programs provides daily living skills enhancement, functional education and training, employment services and general supervision. Victory Living Programs' training philosophy stresses self-reliance as a goal for its clients. A Parenting program is provided to those clients with children to minimize the potential for abuse. Advocacy Center. A non-profit organization providing protection and advocacy services in the State of Florida. Their stated mission is to advance the dignity, equality, self-determination and expressed choices of individuals with disabilities. American Spinal Injury Association. The American Spinal Injury Association has developed an Internet website to provide information and education about Spinal Cord Injury (SCI) to ASIA members and to the general public. The website may also serve to facilitate e-commerce and provide value-added services to members, other spinal cord injury-related providers, health care businesses, and the general public. Brain Injury Association of America. The Brain Injury Association of America was founded in 1980 by a group of individuals who wanted to improve the quality of life for their family members who had sustained brain injuries. Despite phenomenal growth over the past two decades, the Association remains committed to its grassroots. The Brain Injury Association of America encompasses a national network of more than 40 chartered state affiliates across the country, as well as hundreds of local chapters and support groups. Brain Injury Association of Florida. BIAF is a non-profit organization founded in 1985 by the mother of a young man who sustained a traumatic brain injury from an automobile crash. The organization assists individuals with brain injuries, their families and professionals by providing statewide information and resource center education and training; support services toll-free help line; awareness and prevention programs; legislative advocacy All resources are provided free of charge to persons with brain injuries and their families who request information. Anyone who might benefit from our support services, educational materials, or other resource information is encouraged to participate in the organization. Brain Injury Recovery Kit by Day-Timer. A five- step program that provides strategies, support and tools needed for the day-to-day challenges unique to brain injury. Brain Injury Resource Foundation. The stated mission of the Brain Injury Resource Foundation is to provide education, advocacy and support for persons affected by brain injury. Bright Steps Forward. Bright Steps Forward, Inc. is a 501c nonprofit organization that provides funding for intensive pediatric therapy to financially disadvantaged children with neurological disorders such as cerebral palsy, disabilities of prematurity, autism and other congenital or acquired conditions that affect their physical functioning. Intensive pediatric therapy uses state-of-the-art therapy techniques, such as the TheraSuit Method and Hyperbaric Oxygen Therapy along with more traditional physical therapy methods to achieve rapid strides in physical strength and coordination. Bright Steps Forward, Inc. accepts grant applications from individuals, regardless of their geographic location, race, gender or sexual orientation. If accepted, all that's needed is the drive to succeed and the expectation that miracles, indeed, can happen. Those found to qualify for and who receive a grant (based on financial need and documentation of illness) may attend any of the forty or so clinics nationwide that offer this type of therapy. Caridad Center. Founded in 1989 by Caridad Asencio and Connie Berry, The Caridad Center and The Migrant Association of South Florida provides free medical and dental care to a large population of migrant farmworkers, laborers and the working poor of Palm Beach County through the dedicated work of more than 500 licensed professional and community volunteers CaringBridge. CaringBridge® is a nonprofit 501(c)(3) organization offering free personalized Web sites to those wishing to stay in touch with family and friends during significant life events. Their mission is to bring together a global community of care powered by the love of family and friends in an easy, accessible and private way. Center for Information & Crisis Services. The Center for Information & Crisis Services now called 211 Palm Beach/Treasure Coast is in its fourth decade of providing a team of specially trained paid and volunteer staff to assist callers with information and referral services, crisis counseling, and suicide intervention, 24 hours a day, 365 days a year. Additionally, 211 Palm Beach/Treasure Coast collects and maintains information on community health and human services and makes this information available via its hotlines, helplines, printed directories, and on the web. Services are provided at no cost to anyone regardless of race, age, religion, national origin, sexual orientation, or disability. Centers for Independent Living. Nonprofit corporations that provide free of charge services to maximize the independence of individuals with disabilities and the accessibility of the communities they live in. The main services provided are advocacy, independent living skills training, information and referral, peer counseling. CIL have branches throughout the state of Florida. Some offices provide equipment loan program, crime victim's advocacy, after-school and summer programs for adolescents with disabilities. Below are the offices in the South Florida area:
Epilepsy Foundation of South Florida. The Epilepsy Foundation is the national voluntary agency solely dedicated to the welfare of the 2.7 million people with epilepsy in the U.S. and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; and to prevent, control and cure epilepsy through research, education, advocacy and services. In addition to programs conducted at the national level, epilepsy clients throughout the United States are served by affiliated Epilepsy Foundation offices in nearly 100 communities. Family Network on Disabilities of Florida. Family Network on Disabilities of Florida, Inc. is a statewide network of families and individuals who may be at-risk, have disabilities, or have special needs and their families, professionals, and concerned citizens. Their stated mission is to ensure through collaboration that Floridians have full access to family-driven support, education, information, resources, and advocacy and to serve families of children with disabilities, ages birth through 26, who have the full range of disabilities described in section 602(3) of IDEA. Florida Alliance for Assistive Services and Technology. FAAST is a non-profit organization funded by the US Department of Education through the Assistive Technology Act of 2004, Rehabilitation Services Administration (RSA), private foundations and individuals. FAAST has worked with thousands of people with and without disabilities throughout the state to provide hands on assistive technology demonstrations and trainings; financing for assistive technology purchases; assistive device lending programs; community outreach to rural and underserved groups; accessible, affordable housing; advocacy and education on consumer choice. Florida Spinal Cord Injury Resource Center. The Florida Spinal Cord Injury Resource Center (FSCIRC), established in January 1994, serves as the statewide clearinghouse of SCI resource information for persons who have survived an SCI, their families and friends, healthcare professionals, support groups, the media, and the general public. The purpose and benefits in operating such a center are to increase knowledge of SCI related resources; help prevent secondary medical complications resulting from lack of knowledge; foster independence through self-knowledge; provide immediate access to current SCI resource information when needed by consumers throughout their lifetime. International Brain Injury Association. The International Brain Injury Association (IBIA) is dedicated to the development and support of multidisciplinary medical and clinical professionals, advocates, policy makers, consumers and others who work to improve outcomes and opportunities for persons with brain injury. Founded in 1993, the IBIA was created in response to the growing demand from professionals and advocates throughout the world for collaboration and more information on all aspects of brain injury, from prevention to long-term care issues. In 1998, the International Association for the Study of Brain Injury, a professional association, merged with the IBIA. The IBIA works to develop positive relations and interactions between individuals, families, groups, organizations, institutions, diverse cultures and nations. The IBIA strives to provide international leadership for creative solutions to the issues associated with brain injury. K-9 Companions for Independence. Canine Companions for Independence is a non-profit organization that enhances the lives of people with disabilities by providing highly trained assistance dogs and ongoing support to ensure quality partnerships. CCI is funded by private contributions and receives no government funding. CCI graduates pay only a $100 Team Training registration fee that is reimbursed in supplies. Miami Project to Cure Paralysis. The Miami Project to Cure Paralysis is the world's largest comprehensive spinal cord injury (SCI) research center; dedicated to finding more effective treatments and, ultimately, a cure for paralysis; a Center of Excellence housed at the Lois Pope LIFE Center at the University of Miami School of Medicine. Mothers Against Brain Injury. Our mission is to help families within the first few hours of arrival at the Trauma Center by supplying our Tote Bags free of charge. Due to HIPPA regulations, we maintain a level of tote bags to be presented by the nursing staff. We have no direct contact with families while in the PICU. National Spinal Cord Injury Association. Founded in 1948, the National Spinal Cord Injury Association is the nation's oldest and largest civilian organization dedicated to improving the quality of life for hundreds of thousands of Americans living with the results of spinal cord injury and disease (SCI/D) and their families. This number grows by thirty newly-injured people each day. At NSCIA, we educate and empower survivors of spinal cord injury and disease to achieve and maintain the highest levels of independence, health and personal fulfillment. We fulfill this mission by providing an innovative Peer Support Network and by raising awareness about spinal cord injury and disease through education. Our education programs are developed to address information and issues important to our constituency, policy makers, the general public, and the media, and including injury prevention, improvements in medical, rehabilitative and supportive services, research and public policy formulation. North American Brain Injury Society. The North American Brain Injury Society (NABIS) was established in June 2003 as the North American chapter of the International Brain Injury Association (IBIA). NABIS is a society comprised of professional members involved in the care or issues surrounding brain injury. The principal mission of the organization is moving brain injury science into practice. Whether it is in the area of clinical care, research, policy or litigation, the organization stands behind the premise that advances in science and practices based on application of the scientific evidence will ultimately provide the best outcomes for those with brain injuries and the community as a whole. Parent to Parent of Miami. Parent to Parent of Miami, Inc., is a federally funded Community Parent Resource Center serving Miami-Dade and Monroe Counties. Our program is a community wide, tax exempt, non-profit organization that provides information, educational training, support, and emergency assistance, to families who have children and adults with disabilities and/or special needs. The services are provided in English, Spanish and Creole. Access On Time. AccessOnTime is a leading national provider of non-emergency transportation and language services specializing in workers’ compensation. Serving customers in all 50 states, AccessOnTime offers all forms of medical transport services as well as translation into more than 200 languages and dialects. We are there when you need us to manage the details of connecting people with healthcare services professionally, efficiently and compassionately. Transportation for children and adults with a disability. This site displays providers of safe, cost effective transportation for children and adults who cannot purchase or provide their own transportation. Paralyzed Veterans of America. The Paralyzed Veterans of America, a congressionally chartered veterans service organization founded in 1946, has developed a unique expertise on a wide variety of issues involving the special needs of our members— veterans of the armed forces who have experienced spinal cord injury or dysfunction. Veteran's Service Offices. Provide free of charge programs including veteran's benefits, veteran's housing and veteran's information. Gulfstream Goodwill Industries. Gulfstream Goodwill has a new TBI Supported Living Program for individuals living in Palm Beach County who have experienced Traumatic Brain Injury. In contrast to our TBI Community Reintegration Program, the newly formed TBI Supported Living Program focuses on maximizing individuals’ specific day-to-day skills to become as independent as possible. The TBI Supported Living Program provides one-on-one services and group-oriented services in the home and in the community. Individuals are given assistance with tasks, such as shopping, transportation, cooking, budgeting, and recreation. Currently the group meets at the Ullmann-Pickett Center in West Palm Beach on Tuesdays to work on social and independent living skills and on Fridays to go on community interaction outings. Job Accommodations Network. The Job Accommodations Network is a service of the Office of Disability Employment Policy (ODEP) of the U.S. Department of Labor. Vocational Rehabilitation Offices. Their stated mission is to enable individuals with disabilities to obtain and keep employment. |
